African Data for GTR Survey

Context and Aim:

It is currently difficult to identify a partner for genetic testing or for genetic consultation on the African continent. The NIH Genetic Testing Registry has not been populated with our information yet. Having the African capabilities queryable and searchable in one repository will inform research collaborations and facilitate outsourcing of genetic tests inside the African continent. This will also offer a greater visibility and recognition of the efforts done by African institutions as well as acknowledge the support from our funders. The H3Africa Rare Disease Working Group (H3ARDWG) and the African Rare Diseases Initiative (ARDI) are inviting you and your team to report your capabilities by filling the following survey. Collected information will be proposed to the GTR and referenced on H3Africa and ARDI websites.

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